Doctors and ME/CFS
Despite the World Health Organisation listing ME as a real neurological illness, many doctors - my own included - still think the illness is all in the mind. When I first became ill, it was clear that my doctor wanted to do anything but give me a proper diagnosis. Mention the words ME or CFS […]
Post-exertional malaise really sucks
In case you’ve never heard the term before, post-exertional malaise is basically the technical term for the delayed fatigue that afflicts ME/CFS sufferers. And when I say ‘fatigue’, I don’t just mean feeling a little tired: I mean laid flat-out on the sofa for hours, aching in parts you never knew you had. Such […]
Top tips for coping with CFS
In my experience, chronic fatigue syndrome can have a devastating effect on your life. When the illness first hits you, you can be so overwhelmed with the sheer number of symptoms that it leaves you feeling totally helpless and vulnerable. Unless you have a good doctor who recognises early on what you’re suffering from and […]
Introducing … me!
Hi folks. Jon’s the name, pleased to meet you. One day at work in January 2007 (exactly a year after being diagnosed with type-2 diabetes) I suddenly felt very ill. Literally within half an hour I went from feeling okay to feeling absolutely terrible. I’d already had influenza twice in my life, and that’s what I thought it was, as the symptoms were very similar: sudden onset, weakness, shivers, headache etc. My boss didn’t need much convincing to send me home - everyone who saw me agreed that I looked terrible.